Category: Celiac

Is Gluten-free Still a Smart Bet for Food Retailers?

Is Gluten-free Still a Smart Bet for Food Retailers?

All Activity Celiac Disease & Gluten-Free Diet Forum – All Activity

Thanks Karen – I’m actually in the UK but know where I can stock up ! I’m surviving so far, feeling pretty rotten but then I suppose that is to be expected.

My son experienced auditory and visual hallucinations, insomnia, emotional lability, sensory processing issues, steropathy, constipation, bloating, episodes of confusion, episodes of speech deficit, etc. His symptoms nearly disappeared after going gluten and dairy free (despite negative celiac results). The steropathy was our only seemingly lingering symptom and that has since gone away after adding high dose of vitamin B12. He also takes a multi strain probiotic which helped tremendously.


My friend is from Ireland and was recently diagnosed with celiac disease. Her older sister was diagnosed with celiac disease as a child in the 1950’s. She too, was told that she would out grow it. She kind of did. She went off the gluten free diet. Celiac disease is like a chameleon, always evolving and changing. She married, had kids but by midlife, she became very ill. Her celiac disease never really went away. Armed with current information, she insisted that her siblings get tested. One sister, my friend, tested positive. All those aches and pains she attributed to getting older. Now, she is feeling much better!

I am sorry that you have been ill. I hope you will recover quickly!

Hi Dayle,

We can’t change our past, but we can change our future. You have taken the right step in going gluten free, it may take quite a while for your gut (and the rest of your body) to heal because you have had coeliac disease for so long, but any positive step is the right one!

When I was in my early 20’s I was diagnosed with IBS, but in more recent years, (I’m in my late 50’s) diagnosed with coeliac disease. It did a lot of damage to my body and was extremely ill. Finding out I had coeliac disease though, helped me to change my whole diet and slowly I’m starting to feel better. When you’ve had something for so long, you do not get better over-night and you may find other challenges along the way (I have multiple food intolerances, all lot of them due to eating gluten free foods, which have ingredients in them you don’t always find in gluten foods), but to continue eating gluten is not an option.

Don’t give up hope, every day is a new beginning.


Please consider researching celiac disease instead of relying on a pediatrician’s advice alone. None of my primary care physicians are/were celiac savvy. You should consider a Ped GI referral for care. A GI will know the long term effects of celiac disease and other issues that can develop with it. Already, the red flag that we’re are seeing based on your posts, is that he is recommending the diet without even waiting for the lab tests. I know we are just people on a forum and who are you going to trust? You. You will need to be her health advocate. You do not have to become an expert, but you should have a clear understanding of what is involved. So, please research. The University of Chicago has a well-written website and they are a leading celiac research center.

Screening for celiac disease

On this forum, we have seen botched lab tests, incompetent doctors, the list is endless. celiac disease can be tricky to diagnose. What blood tests were ordered? If your Ped did not order the entire panel, her diagnosis might be missed. Not all patients test positive to just the standard screening test (like me!!!). It catches most but not all.

So, it is just a diet change……… Her siblings have celiac disease. Let’s go gluten free. Fine for an adult, but you want a firm diagnosis for school accommodation (504 plan). You really want to be sure gluten is the cause of her symptoms. She is going to have to buy into this diet that can be very isolating. What you do now will impact her as a teen.

you have already started to advocate for her by reaching out to us. Keep up the good work! Together, you can improve her health. Be patient. It takes time to damage and time to heal.

Best wishes!


Published at Tue, 09 May 2017 15:30:00 +0000

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